Tuesday, December 11, 2018

Deaf Culture

Presented by Sara Kreiling, Deaf and Hard of Hearing Specialist




  • Information and Referral
  • Direct Client Assistance
  • Consultation
  • Trainings/Presentations
  • Equipment Demonstration
  • Employment Equipment Loan Program
  • Telephone Equipment distribution (TED) Program
  • Mental Health Program
  • DeafBlind Consumer Directed Services Program


Deaf History

Demographics
There is a whole spectrum of hearing loss, 1 in 5 Americans has a hearing loss (30-50 million. Hearing loss is increasing with noise induced hearing loss caused in part by ear buds which brings music directly into the ear. 

Some Causes of Deafness
  • Autoimmune Inner Ear Disease
  • Genetic
  • Hereditary
  • Ototoxicity
  • Meningitis
  • Nerve Damage from Trauma (Head Injury)
  • Tumors
4 Major Categories of Hearing Loss
  • DeafBlind
  • Culturally Deaf-Born info a deaf family, stick to the deaf community
  • deaf (with a lower case "d")-Hearing loss, but not part of culturally deaf, don't use sign language.
  • Hard of Hearing-Can refer to degree of hearing loss or to someone who lip reads, enhances hearing
Definitions:
  • Deaf-The capital "D" refers to people who communicate using primarily sign language and consider themselves member of the Deaf community.
  • deaf-with a lower case "d" refers to anyone with a hearing loss, whether they have been born deaf or have become deaf during their lives. They primarily communicate like hearing people but may also use sign language.
  • Hard of Hearing: Having a varying degree of hearing loss, may benefit from hearing aids or other assistive listening devices, depends primarily upon spoken or written English.
  • Late Deafened-Hearing loss after childhood when language has been established. Often do not learn sign language.
  • DeafBlind: Combined hearing and vision loss that affects a person's ability to communicate with others, get information about the environment, participate in the community and maintain independence. 
Terminology to Avoid:
  • Hearing Impaired
  • Deaf and mute
  • Deaf and dumb
Find out more from the person with a hearing loss about his/her preferences. Ask "How do you identify yourself?"

Hidden Aspects of Hearing Loss:
  • Communicative
  • Social
  • Linguistic
  • Psychological
  • Economic
  • Vocational
  • Educational
  • Cultural
Culture: A Set of Learned Behaviors of a Group of People

Usually learn language at home from parents and from media, if grow up in hearing family, may be learning culture more from Deaf school, which can be an opportunity to learn Deaf culture, communicate, perfect signing. (Metro Deaf School-charter school for Deaf and Hard of Hearing). 

Every Culture Has Four Main Elements (Language, Values, Norms, Traditions)

Deaf Cultural Tenents
  • Language-American Sign Languag (ASL)
  • Values, Hands/Fingers, Eyes
  • Norms: Getting attention (tapping on shoulder, waving a hand), Deaf Applause (waving hands in air)
  • Traditions-Deaf Clubs, mass community meetings, Residential Schools for Deaf

Passing of Ethnic Cultures (Happens Vertically throughout generations from Great Grandparents to Grandparents, to Parents, Aunt, Uncles to Child)

Horizontal Passing of Deaf Culture, comes from side from the Deaf Community, Deaf Social Worker, Deaf House Parent (if living in residential school), Deaf Teacher, Deaf Community Members, Deaf Peers)
  • 90-95% of deaf children have hearing parents
  • Many don't learn Deaf culture from passing down through generations but from community and assistants, peers, teachers.
Misunderstandings may occur because of cultural differences
  • Deaf people will pound on tables or tap on people to get attention. May also flicker lights. 
  • They can't hear themselves and probably can't tell that they are noisy when they do things like set something down. 
  • For someone who is DeafBlind they will have tactile signing, sign in hand or possibly on back, to show where things are.
  • Deaf people may ask a lot questions like where someone is from because this can help establish ties to the community, may know someone who knows someone.
  • Deaf people may ask questions about where someone is going because they can't hear when they are leaving and won't know when they are coming back.
  • Deaf people may ask a lot of questions because they can't hear environmental cues and need more information to determine what is happening.
  • Deaf people may watch pets respond to sound as this is a cue that something is happening.
  • At concerts some Deaf people may hold balloons to help feel vibrations. 
  • Some Deaf people may play music too loudly, they are feeling the vibrations, but can't tell how high the volume is. 

What is Viewed as Rude in Deaf Culture
  • Signers not signing when another signer is present
  • Walking between two signers (ok, but try to move quickly and don't need to duck)
  • Turning room lights off/on when only trying to get one person's attention and not the whole group.
  • Staring at a person with a hearing loss.
  • Grabbing a signer's hands to force him/her to stop signing and pay attention to you.
  • Waving your hand right in front of a Deaf person's face.

Deaf Cartoons: There are lots of Deaf cartoons that reflect Deaf Culture. 

Myths Busted and Faux Pas:
  • But she speaks well (for a deaf person)
  • She can't learn if she doesn't speak.
  • All Deaf people know sign language.
  • All Deaf people lipread well.
  • Deaf people can't talk.
  • She can hear me if I shout.
  • She's Hearing if she has a cochlear implant.
  • She can hear me. She's just bluffing.
  • All persons with hearing loss benefit from hearing aids/assistive listening devices.
  • Hearing aids can cure deafness. (Some may wear to hear environmental sounds but can't discern speech. )
  • She can read so there's no barrier to communication.
  • She's not bright or educated because her English grammar (grammar in sign language is different) is poor.
  • If a Deaf child is taught to sign, he/she won't learn to speak.
  • Deaf people can't raise kids.
  • Deaf people can't drive a car.
  • Deaf people can't pilot airplanes.
  • Deaf people can't use the phone.
  • Deaf people can't read.
  • Deaf people read Braille. (Speaker said she had been brought a Braille menu in a restaurant. People trying to help but not knowing how may sometimes offer a wheelchair or a cart in an airport.)
English vs. ASL

English:
  • Word order: subject-verb-object (svo)
  • Grammar is acquired through incidental learning
  • Tenses "ed", "ing"
  • Articles "a", "the"
  • Conjunctions "and" "but"
  • Prepositions "under" "in"
ASL

  • American Sign Language (ASL) is a visual-spatial language.
  • ASL is a language with its own unique rules of grammar and syntax. When Deaf people write notes it may be with ASL syntax so it may seem oddly worded. 
  • The palm orientation, hand shape, placement, and movement of the hands, as well as facial expressions and body movements, all play important parts in conveying information.
  • ASL is not English, pantomime, iconic (meaning the form or shape of signs don't always represent  the word's meaning.). 

ASL Grammar
  • Topic-Subject-Verb-Object
  • Does not use the "to be" verb
  • Does not use articles "the", "a"
  • More use of rhetorical questions
  • Example of word order , typed Hospital John hates (literally Hospital-John hates it), English translation John hates the hospital.
  • Time sequenced ordering: Typed-Yesterday lunch finish, boss give me work big stack, night class late me. English translation: I was late to class last night because my boss handed me a huge stack of work after lunch yesterday.
"Finish" in ASL
The word/sign "finish" is used frequently to establish past tense or as a completive matter. 
Meanings:
  • done, all done
  • already
  • it's over
  • did it
  • got it done
  • yes it is finished
  • (rarely used in typing) stop it or cut it out
  • Example: typed My cut bleed finish, English translation-My cut has stopped bleeding.
  • Example: typed Finish call nurse. English: I called the nurse already. 
Examples of Negation in ASL
  • Blood I have none (English translation: I am not bleeding.)
  • Ambulance I no want. (English translation: I don't want an ambulance.)
WH and Rhetorical Questions
  • Typed: You saw what?, English translation: What did you see?
  • Typed: What Juan do you what? English translation: What did Juan do to you?
The question word is often at the end.
Syntactic word order (adjectives and numerals commonly placed after nouns)
  • Typed: Eye black I have. English translation: I have a black eye.
  • Typed: 9:00 morning hospital I go. English translation: I will go to the hospital at 9 a.m.
Like its French origins, ASL has adjectives coming after the noun it describes. 

Characteristics of ASL used in English
  • Flipped words, usually for brand names, for example: Bell Taco, Hut Pizza, cheese cream, water sparkling, loss vision, tea iced
  • Incorrect use of present tense: Typed: I am interesting in go to hospital, English translation: I'm interested in going to the hospital.  Typed: I'm scaring. English translation: I'm scared. 
  • People who are Deaf think in the present tense, but may not change the tense when writing/speaking because they didn't learn how it sounds.
Some signs are iconic and look at least somewhat like the word represented. Some signs are arbitrary and don't look at all like what they mean.

Toolbox:

General Communication tips:

  • Introduce one idea or fact at a time
  • Use basic sentence construct (avoid passive or if/then clauses)
  • Use commonly used words (doctor vs. physician, ambulance vs. EMS)
  • Be ready to use substitutions or to rephrase
  • Try to match the level the person with hearing loss uses
  • Eliminate or minimize background noises when possible (this includes visual noise too-bright colors, patterns can seem overstimulating, interpreters usually wear solid colors like black). 
  • Speak normally
  • Don't exaggerate lip movements, shout, or over enunciate.
  • Use common gestures to help with communication.
  • Relax and be patient with yourself.
  • Get the person's attention before speaking .
  • Announce topic changes or mention context.
  • Make sure whenever possible that the person with a hearing loss can see your face. (need eye contact to signal that are talking)
  • Ensure lighting is good and there isn't any glare.
  • One person speaks at a time. This still applies if there is a sign language interpreter or someone providing captioning services (CART) because you need to be able to look at the person speaking to follow the conversation. 
Written Communication:
  • Computers/Tablet/Mobile phone, e-mail, texting
  • Real time captioning
  • TTY/TDD, not used much with less use of landlines (more use of e-mail and texting)
  • Pen/paper-used more by older people
  • Faxing, not used much any more. 
  • English can be like a 2nd language if ASL was learned first. Itmcan help to get a transcript, have real time captioning, interpreter, note-taker. 
Social situations:
Feelings of isolation can be common in school, work, community activities, family settings. Conversations change quickly in mixed (ASL/English) environments and people with hearing loss can get left out if they can't experience things the same way (if aren't kept in the loop about what is going on.)

Deaf people can be overprotected:
  • May end up learning to be helpless.
  • Don't have an opportunity to practice problem solving.
  • Can't anticipate consequences, etc.
  • May lack the skills to take care of themselves.
  • Can be worse off when "protector" is no longer around.
Signer vs. Interpreter

Signer
  • Knows some sign language
  • Hasn't necessarily taken formal sign language or interpreting courses.
  • Not required to follow professional Interpreter Code of Conduct
  • May not meet legal mandate of qualified interpreter
Interpreter
  • Communication link between hearing and deaf or hard of hearing people
  • Trained professional facilitator of communication and cultural mediation
  • Extensive knowledge of ASL and Deaf Culture, English, Other modes of communication, interpreting process
  • Interpreter National Certifications, most common credentials, NIC, OTC, NAD certifications -NAD III, NAD IV, NAD V, Educational settings ED K-12, Deaf Interpreters CDI, Legal settings, SC:L and CDI
  • Pocket talker
  • Phone (amplified) signaling
  • Alarm (plug into lamp), visual signaling
  • Tactile signaling (vibrate)
  • Some people may have service dogs
  • Telecommunication devices, web camera, mobile phone, IP Relay, videophones and video relay services, instant messaging, texting
Video relay services (free service), Deaf person usess software that connects to VRS and then signs to the interpreter, interpreter speaks to the hearing person, hearing person speaks to the interpreter, 
etc.

Video Remote Interpreting-may also have interpreter remotely who can help with interpreting via video.
UbiDuo:  Face to Face Communication Device, can type back and forth, , usually about $1,000.00

Tried and True Communication Solutions:

  • Writing
  • Email
  • Interpreting/signing (esp helpful if longer, 1 hour or more)
  • Sign Language classes
  • Technology: video phones, video relay service, captioning, CapTel, texting, CART (computer assisted real time translation)
What most deaf people want:
  • YOU to understand THEM
  • To be treated as individuals
  • To be treated as equally as their hearing peers
  • To be allowed equal educational and employment opportunities
  • YOU to be aware of deafness and hearing loss and variety/diversity within deaf community

Resources:


ASL websites

Free Online Training
(Developed by Deaf and Hard of Hearing Services)
Sara Keiling, Deaf and Hard of Hearing Specialist
Sara.Kreiling@state.mn.us
507-550-3130 (VP-video phone)


--Erin Z.R. @GLCL



Vison Loss Resources



The Assistive Technology team recently had a meeting where we met with Shelbie from Vision Loss Resources to learn more about their services. Shelbie has made some larger business cards with fairly large print on them so people can contact her with more information on VLR services. We put some near our Large Print books at GLCL and also one on the Older Adult shelf in Nicholson Commons.

Here are some notes I took during our meeting:

Visit with Shelbie from Vision Loss Resources (used to be MN Society for the Blind, over 100 years old).


  1. Shelbie showed us different magnification devices they have to offer clients.
  2. Vision Loss Resources helps people with coping with vision loss, home visits, independence classes-using canes, computer/app resources, support groups, etc.
  3. Causes of vision loss: glaucoma, macular degeneration, diabetic retinopathy, cataracts.
  4. Shelbie also showed us some glare glasses-these can be useful for people with vision loss to help cut down on glare. May want to consider for library. 
  5. Ways to make buildings friendlier for people with vision loss: contrast, patterns on floors, tables can be hard for a person with low vision, a solid color table is okay, glass tables are hard because of the glare. Lighting-direct lighting is good, sometimes having a goose neck lamp can help direct light on to something for people. Some magnification devices aren't powerful enough for some with vision loss, may need something stronger.   Shelbie mentioned she could look into whether any grants around to help us purchase some equipment, supplies. 
  6. Signage: with flyers, it is good to have clear bold fonts, nothing too ornate, larger letters
  7. Zoomtext can help people with vision loss. CCTV-with contrast options helps. 
  8. Work arounds: wrote barcode with label marker in larger font and put on name line on back of card to help person see barcode
  9. Minneapolis office of VLR offers more classes, St. Paul office offers more events, can come to speak to groups about resources, apps, other topics. Discussed maybe having library go to DigiDaze (Rondo) to show Assistive Technology resources and maybe ask someone like VLR to present as well. 

Handout on coping with vision loss available here.


--Erin Z.-R. @GLCL